I keep listening to Kabhi Alvida Naa Kehna. It's Hindi for "Sometimes There Are No Goodbyes".
We promised each other that the second year we were in love. We were merely 16 but I think we both KNEW then that it was forever. From then on, we only ever said 'Bye' to each other when we needed to part. All these 18 years. But do you know what Bipolar Disorder involves? It involves saying 'goodbye' whenever there's a shift in the phase he is in because he changes colours and it takes a while for him to stabilise every time he does hit a shift in his mood. And i never know if he will come back. The man i love is in there somewhere in the tangle of his moods and unfocused mind. He loves me. And he cares for me like i am precious gold when he is well and able to function like the rest of us who take our ability to walk a straight mental line for granted. But i never know when and if i will see him again everytime he 'leaves'. After all, the last time he left, it took over 2 years for me to see him again.
My favourite phase has to be depression. (Let's not talk about normal - my partner rapid cycles so he is never there long.) That's when he slows down and is able to hear me in his head. That's when he is willing to be loved and affirmed and eventually responds to all the love we share. And it's the connection that i can establish during his depression cycle that finally enabled us to find a combination of both medication and lifestyle patterns that has worked to stabilise him during these phases, and we have been able to live some amazing days of our lives.
But not so the Hypomanic phase. 5 weeks ago my partner was finally looking after me like i could never have imagined and i knew the sweet taste of victory that years of faith and perseverance had made possible. But 3 weeks ago that changed as his mood cycle shifted. His racing brain took off from the runway and i was left watching his plane become a distant dot in the sky, while i was left behind still frantically trying to purchase my ticket at the airline counter. We haven't yet found the right combination of medication for this cycle, much less lifestyle patterns that are conducive to him stabilising as that is so closely tied to the right dosage of medication.
And so, here i am left at the airport terminal..awaiting my flight to catch up with the love of my life who once again, has run off ahead of me. How do you explain the loneliness of missing someone who is right there? Some people know how that feels once a relationship turns sour but what is hard to explain is the yo-yo feeling of this happening in a BP relationship especially without anything turning sour between the people involved. Every time he switches to the manic phase..i lose the connection to him. And then when he switches back to depression and stabilises, he can become the most sensitive affectionate man i know. It is THIS man that i grieve over..i hate to see him go. And every time he leaves, he never says goodbye. Maybe because he's keeping the promise we made at 16. Maybe because it isn't really a goodbye and he expects to be back.
But i don't think i have the same confidence. I only ever know it's not been goodbye when i see him come back. In fact, i realise now that this could very well be my greatest fear - that one of these days it will be a real goodbye.
It suddenly becomes clear why i keep wanting to listen to Kabhi Alvida Naa Kehna - "Sometimes There Are No Goodbyes". I need to believe this to face down my greatest fear... and get to the other side. It's time i stopped being afraid of losing him when he hits Hypomania. Only then can i unleash the Power of Love that has the ability to conquer the dark side and bring him back to me, just like it did when i stopped being afraid of Depression.
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I wanted a love of a lifetime. It came. With complications. No one said Love is easy, but i never knew it could be this hard. But I promised for better or for worse.. and to believe that whatever challenges we have had to face in life... Love WILL make a way
Tuesday, June 23, 2009
Friday, May 29, 2009
The Masculine Side
I want a God who will love me unconditionally. I want a God who will not judge me. I want a God who will accept my weaknesses and help me build on my strengths. I want a God who will let me rest. I want a God who will accompany me through scary moments. I want a God who will support me.
I want a father who will speak to me with love, not fear. I want a father who will tell me love stories. I want a father who will sing songs and laugh at jokes. I want a father who keeps his word. I want a father who respects my need for feminine expression. I want a father who won’t withdraw into a distant shell. I want a father who won’t threaten me with aggression. I want a father who will try to understand, and be proud of my choices.
I want a man who will want my children. I want a man who will love my children, protect them and play with them. I want a man my children can admire and respect. I want a man who wants to be with my children because he enjoys them. I want a man who can understand my children.
I want a God who won’t test my faith.
I want a father who I can go to for unconditional help.
I want a husband who won’t betray my trust.
I want strong loving arms to come and carry me. I want strong loving arms to rest in. I want strong loving arms to protect me. I want a strong loving heart to admire. I want a strong loving heart to respect. I want a strong loving heart to love me... and never let me go.
I want a father who will speak to me with love, not fear. I want a father who will tell me love stories. I want a father who will sing songs and laugh at jokes. I want a father who keeps his word. I want a father who respects my need for feminine expression. I want a father who won’t withdraw into a distant shell. I want a father who won’t threaten me with aggression. I want a father who will try to understand, and be proud of my choices.
I want a man who will want my children. I want a man who will love my children, protect them and play with them. I want a man my children can admire and respect. I want a man who wants to be with my children because he enjoys them. I want a man who can understand my children.
I want a God who won’t test my faith.
I want a father who I can go to for unconditional help.
I want a husband who won’t betray my trust.
I want strong loving arms to come and carry me. I want strong loving arms to rest in. I want strong loving arms to protect me. I want a strong loving heart to admire. I want a strong loving heart to respect. I want a strong loving heart to love me... and never let me go.
Wednesday, May 13, 2009
Hero Blues
I find myself struggling at times to remember what it feels like to be carefree. Mainly because i have lived with responsibility for so long now that i find myself unable to detach from a constant rod up my back even when i don't have to assume control and provide caregiving attention to those around me.
At some point in my life i became Superwoman. The role of caregiving in my life became who i am as a person. My job took over my life. I mixed business with pleasure. And now all i have left is my job ruling every part of my life. Ever see Clark Kent and think of him as Clark Kent? Or do you like me, see Superman merely in disguise? That's precisely the point i am making. I'm just Superwoman in disguise now.
I have begun to question the virtue of being strong these days. It's really not that rewarding on my weak days because i DO have them too. I wonder sometimes if instead of strength, i'd like to have the ability to become invisible. Shut off and shut it out. Become completely detached. Oh but wait, i had to summon that power as a child. I was often seen and not heard. After a while i became good at being unseen as well. After all, it was almost the same thing. So i think maybe not. It's not a healthy talent to develop while trying to establish more companionship and affirmation in my life.
So what superpower would i like to have? Somehow i don't think heroes have a choice what their specialties are. I have seen superheroes give up their powers, but not develop a completely different one. It's inborn, our gifts and abilities, so is it even possible for me to ever shut off my strength? I may end up feeling tortured about being untrue to myself.
So maybe the answer lies more in me finding a way to just be myself sans the requirement for my superpowers to be active at all times. Something that would help clearly distinguish me as a person from my superhero identity. I guess that's why some jobs require uniforms. Really just something you can literally remove and suddenly, the role is over. A soldier out of his uniform does not carry a gun. A doctor out of her coat does not lug a stethoscope about. Should some emergency require their skill, they can help. But they don't walk through life after uniform hours on constant alert that they will be unprepared should an enemy or a disease strike.
Yet i do. I have no after hours and i am constantly on alert should i be found wanting while on duty. And i have become fatigued from feeling that i need to constantly be on duty...to be constantly strong.
I guess that's my ongoing struggle with BP. Finding a way to feel safe enough to be carefreely just me.
At some point in my life i became Superwoman. The role of caregiving in my life became who i am as a person. My job took over my life. I mixed business with pleasure. And now all i have left is my job ruling every part of my life. Ever see Clark Kent and think of him as Clark Kent? Or do you like me, see Superman merely in disguise? That's precisely the point i am making. I'm just Superwoman in disguise now.
I have begun to question the virtue of being strong these days. It's really not that rewarding on my weak days because i DO have them too. I wonder sometimes if instead of strength, i'd like to have the ability to become invisible. Shut off and shut it out. Become completely detached. Oh but wait, i had to summon that power as a child. I was often seen and not heard. After a while i became good at being unseen as well. After all, it was almost the same thing. So i think maybe not. It's not a healthy talent to develop while trying to establish more companionship and affirmation in my life.
So what superpower would i like to have? Somehow i don't think heroes have a choice what their specialties are. I have seen superheroes give up their powers, but not develop a completely different one. It's inborn, our gifts and abilities, so is it even possible for me to ever shut off my strength? I may end up feeling tortured about being untrue to myself.
So maybe the answer lies more in me finding a way to just be myself sans the requirement for my superpowers to be active at all times. Something that would help clearly distinguish me as a person from my superhero identity. I guess that's why some jobs require uniforms. Really just something you can literally remove and suddenly, the role is over. A soldier out of his uniform does not carry a gun. A doctor out of her coat does not lug a stethoscope about. Should some emergency require their skill, they can help. But they don't walk through life after uniform hours on constant alert that they will be unprepared should an enemy or a disease strike.
Yet i do. I have no after hours and i am constantly on alert should i be found wanting while on duty. And i have become fatigued from feeling that i need to constantly be on duty...to be constantly strong.
I guess that's my ongoing struggle with BP. Finding a way to feel safe enough to be carefreely just me.
Friday, April 24, 2009
Acceptance
Living with a life changing illness does not rob us if we exchange the quality of one thing we value with another that works better now that change has come. It is the accepting that is the difficult dance step to learn. How much to accept, how much to fight? Or rather which to accept and which to fight?
Adapting to change isn't what's hard.
It's living through the experimenting and choosing which change we are best suited to that is the real climb.
Adapting to change isn't what's hard.
It's living through the experimenting and choosing which change we are best suited to that is the real climb.
Changing Seasons
It's a lot like the changing seasons.
Sometimes it's winter and i live on memories of what the flowers look like in spring and how much fun we had when we went camping in the summer. When i finally do realise it's winter and i can't change the weather, my acceptance means snow angels and roasted marshmallows by the fire. But it usually lasts a week because by the time i finally realise i can make winter work for us, it's spring.
I then find myself clearing out mush and preparing flowerbeds and planting seeds. In time there will be flowers but it's still, a lot of hard work to make sure we get a good harvest. If i am lucky, the scenery lasts for a long time and we don't get a frost or a rainstorm to ruin all my hard work in an unsuspecting flash. I can't help but resent these external forces that tamper with my hard work but again, acceptance usually accelerates healing.
Sometimes it's summer and we just have endless days of fun. These are my favourite times. I live for them. At times it seems that my whole life has been preparing me for these moments. All my hard work over 9 months for 3 months of pure amazing life lived to the fullest. But is 3 months too short compared to 9 months of labour and waiting? I try to live in the moment and in fact, find that selective memory works best. Or else i shorten even the mere 3 months and that leaves me cursing myself in bed at night when i realise what i have done. No, thank you.
Autumn days are when i cry a lot. I am tired from all the fun crammed into 3 months, on top of having worked all through the previous 9 months. So when winter rolls around i am usually quite ready for a quiet time of laying low and reconstructing myself. It's when i usually have my own nervous breakdowns and wonder whether i too, have acquired the same fate from mere association. But eventually the last leaf falls and i am done with my crying. And then i can be strong again. Resilient like the trees that look dead but are actually just asleep.
Know what though? Unlike the real seasons of life, the seasons of bipolar aren't as clear cut. The cycles change rapidly, interchange or stretch on..it's never a certainty what cycle or how long it will last. So i am always caught off guard.
Acceptance i find is a great friend of all seasons and can make each one a positive experience. But she is far easier mentioned than invited to stay, especially when fatigue from shouldering the daily responsibilities of life drains me and i become far more sense than sensibility.
My goal is to become an expert at recognising the signs of each season way before they hit. I'm going to work toward that with all my heart. I think it will help me gain acceptance faster so i can make these seasons work for us far more than against us.
Sometimes it's winter and i live on memories of what the flowers look like in spring and how much fun we had when we went camping in the summer. When i finally do realise it's winter and i can't change the weather, my acceptance means snow angels and roasted marshmallows by the fire. But it usually lasts a week because by the time i finally realise i can make winter work for us, it's spring.
I then find myself clearing out mush and preparing flowerbeds and planting seeds. In time there will be flowers but it's still, a lot of hard work to make sure we get a good harvest. If i am lucky, the scenery lasts for a long time and we don't get a frost or a rainstorm to ruin all my hard work in an unsuspecting flash. I can't help but resent these external forces that tamper with my hard work but again, acceptance usually accelerates healing.
Sometimes it's summer and we just have endless days of fun. These are my favourite times. I live for them. At times it seems that my whole life has been preparing me for these moments. All my hard work over 9 months for 3 months of pure amazing life lived to the fullest. But is 3 months too short compared to 9 months of labour and waiting? I try to live in the moment and in fact, find that selective memory works best. Or else i shorten even the mere 3 months and that leaves me cursing myself in bed at night when i realise what i have done. No, thank you.
Autumn days are when i cry a lot. I am tired from all the fun crammed into 3 months, on top of having worked all through the previous 9 months. So when winter rolls around i am usually quite ready for a quiet time of laying low and reconstructing myself. It's when i usually have my own nervous breakdowns and wonder whether i too, have acquired the same fate from mere association. But eventually the last leaf falls and i am done with my crying. And then i can be strong again. Resilient like the trees that look dead but are actually just asleep.
Know what though? Unlike the real seasons of life, the seasons of bipolar aren't as clear cut. The cycles change rapidly, interchange or stretch on..it's never a certainty what cycle or how long it will last. So i am always caught off guard.
Acceptance i find is a great friend of all seasons and can make each one a positive experience. But she is far easier mentioned than invited to stay, especially when fatigue from shouldering the daily responsibilities of life drains me and i become far more sense than sensibility.
My goal is to become an expert at recognising the signs of each season way before they hit. I'm going to work toward that with all my heart. I think it will help me gain acceptance faster so i can make these seasons work for us far more than against us.
Thursday, April 23, 2009
A Reciprocal Love
I have spent days doing laundry and cooking and mending relationships and being supportive and selfless and making the best of what I have.
But this is not the life I want.
I was willing to wait all this out for a chance at real love and my lifelong dreams. But I have had to make them happen like Cinderella, from the availables in my life.
I want my happy ever after.
And I am no longer content to daily transform scraps into beautiful items. I want to know the feeling of beholding a beautiufl item that's been made by another's loving hands just for me.
I want the glass slipper to fit and to be taken away to the castle.
But I don’t want someone who has to try and love me once i'm there. I want to experience being loved from the heart with affirming words, expressions and actions.
I want someone to dance with. Not someone to dance for.
And certainly no more silences and mere recollections and imagination to fuel the days without music.
I was born with the ability to love compassionately. Yet I am genuinely grateful that i have had to learn to stop being a martyr and instead, build my self esteem and self worth through the power of self love. Still, i want to be loved by another and experience the compassion of a reciprocal love.
How do i get my happy ever after where i can be sure of being loved unconditionally by someone who struggles just to like himself daily?
But this is not the life I want.
I was willing to wait all this out for a chance at real love and my lifelong dreams. But I have had to make them happen like Cinderella, from the availables in my life.
I want my happy ever after.
And I am no longer content to daily transform scraps into beautiful items. I want to know the feeling of beholding a beautiufl item that's been made by another's loving hands just for me.
I want the glass slipper to fit and to be taken away to the castle.
But I don’t want someone who has to try and love me once i'm there. I want to experience being loved from the heart with affirming words, expressions and actions.
I want someone to dance with. Not someone to dance for.
And certainly no more silences and mere recollections and imagination to fuel the days without music.
I was born with the ability to love compassionately. Yet I am genuinely grateful that i have had to learn to stop being a martyr and instead, build my self esteem and self worth through the power of self love. Still, i want to be loved by another and experience the compassion of a reciprocal love.
How do i get my happy ever after where i can be sure of being loved unconditionally by someone who struggles just to like himself daily?
Wednesday, April 22, 2009
In the Beginning
In the beginning there was just a guy and a girl. We were both 15.
We were both young, hopeful and waiting to get away from our limitations into great expectations and even greater dreams.
We had to get over family objections - like Romeo and Juliet.
We had to get over youth - we were minors.
We had to get over distance - we were laying foundations for a future.
We had to get over interference - parents who needed caring instead of giving care.
By then the bipolar had kicked in.
Only we didn't know. And we didn't know for a decade.
We thought we had finally gotten over everything.
We had only begun getting over the biggest hurdle we could ever have imagined.
Bipolar Disorder.
It's been slowly seeing the one i love disappear before my very eyes, stage by stage into someone i have had to fight to believe still loves me despite all the massive destruction left in place of caring for me.
The statistics are that 90% of marriages with Bipolar Disorder end in divorce. Only a mere 10% remain intact.
I'm still here and i live to tell.
We were both young, hopeful and waiting to get away from our limitations into great expectations and even greater dreams.
We had to get over family objections - like Romeo and Juliet.
We had to get over youth - we were minors.
We had to get over distance - we were laying foundations for a future.
We had to get over interference - parents who needed caring instead of giving care.
By then the bipolar had kicked in.
Only we didn't know. And we didn't know for a decade.
We thought we had finally gotten over everything.
We had only begun getting over the biggest hurdle we could ever have imagined.
Bipolar Disorder.
It's been slowly seeing the one i love disappear before my very eyes, stage by stage into someone i have had to fight to believe still loves me despite all the massive destruction left in place of caring for me.
The statistics are that 90% of marriages with Bipolar Disorder end in divorce. Only a mere 10% remain intact.
I'm still here and i live to tell.
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